Oppose the "Right to Try" Legislation

The "Right to Try" Act currently heading to the Senate endangers patients and is opposed by CFRI and over 100 other patient organizations. Please share your views with your Senators today!

The “Right to Try” legislation headed to the Senate would create a far less safe, duplicative means to access investigational therapies outside of clinical trials. CFRI stands strongly opposed to “Right to Try” legislation which is highly confusing, instills false hope for those most at risk, and sharply reduces the ability of the Food and Drug Administration (FDA) to protect patients.

Please fill in the form below to send an email to your Senators!

Thank you!

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Sue Landgraf

CFRI Executive Director and Mother of an Adult Daughter with CF

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Message

Oppose "Right to Try" Legislation that Puts Patients at Risk!

Dear [Decision Maker],

As your constituent and as a member of the cystic fibrosis community, I strongly encourage you to oppose the "Right to Try" legislation being considered in the Senate legislation (which passed in the House as H.R. 5247). This dangerous legislation is not the answer to expanding access to experimental therapies and puts patients at unnecessary risk. Most significantly, there is already a safe, streamlined "Expanded Access / Compassionate Care" program in place with the FDA through which individuals can apply to access investigational medical products outside of a clinical trial. The FDA approves over 98% of all Expanded Access requests! Unfortunately, last year only approximately 1,000 requests were placed with the FDA. Clearly the issue is to inform patients and clinicians about the Expanded Access program, and the FDA's very strong support for those requests that are submitted. This program provides far greater protections for patients.

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I am proud to stand with Cystic Fibrosis Research, Inc. (CFRI) and over 100 other patient groups in opposing this very risky legislation. The focus should be on educating the public about Expanded Access and actively promoting the current FDA process, not creating a new, confusing, unsafe option, which puts our most fragile members of the community at risk.

Please oppose Right to Try Legislation. The most fragile members of our community need your help.

Best regards,
[Your Name]
[Your Address]
[City, State ZIP]